Do you have problems with your bowels?
Are you looking for support? Do you want to know how to enjoy your life despite of a PEG, feeding tube, central venous catheter and many hours of infusion administration?
Do you have an inflammatory bowel disease and a need for some positive energy and knowledge from other IBD patients?
Do you live in a country without any support groups for people with digestive system insufficiency?
Join us! Together we will try help you!
We have entered the new year 2017 PUMPED and with appetite 🙂
On January 12th in the Polish Sejm’s building the 25th Parliamentary Patients’ Rights Committee meeting took place. This time the subject discussed was the SITUATION OF PATIENTS WITH DIGESTIVE SYSTEM INSUFFICIENCY.
The meeting was due to our unyielding efforts to improve the quality of life of the enterally and parenterally fed patients.
An appetizing representation consisting of Magda Sobieska, Marek Lichota, Sebastian Bizon was attending – with the backpacks, of course. This time we brought not only the nutrition formulae but also many ideas for solving the everyday problems of enterally and parentally fed patients. A starting point for the discussion was insufficient reimbursement of the mobile pumps and infusion lines as well as the lack of access to new therapies. A heated debate and the understanding expressed by the participants of the meeting leads us to believe that these problems can be solved. There is still a lot of work ahead of us but we will inform you of our progress!
THANK YOU! TOGETHER WE CAN ACHIEVE MORE! ♥
