Anna Chachaj

When I first heard from my doctor about the parenteral feeding, he told me that I would have to stay in bed 20 hours a day just to have the nutrition administered. Fortunately, he was no parenteral nutrition expert. 😉 But he scared me away from making the decision for over half a year. It turns out that I do receive the infusions every day but It takes 16 hours, not 20. Moreover, thanks to Appetite I got a portable pump that allowed me to return to work just days after I was released from the hospital. Now I feel the best I have in 5 years, ever since I have been diagnosed with chronic pseudo- obstruction of the bowels caused by neurological paraneoplastic syndrome. During that time, I have undergone 7 surgeries, I have fought against adhesions, I had a segment of my small intestine removed and despite the attempts to force some food into myself, I ended up seriously malnourished. Now I eat normally most of the time but when my organism refuses to cooperate, I can stop eating without worrying that I could bring some harm to myself – all thanks to the intravenous infusions.

Looking for support?

Do you have problems with your bowels?
Are you looking for support? Do you want to know how to enjoy your life despite of a PEG, feeding tube, central venous catheter and many hours of infusion administration?
Do you have an inflammatory bowel disease and a need for some positive energy and knowledge from other IBD patients?
Do you live in a country without any support groups for people with digestive system insufficiency?
Join us! Together we will try help you!

Contact us

How you can help?