Magda Sobieska

It is likely that I have had the Crohn’s disease ever since I was a child but I have only heard the diagnose when I was 18 years old. Steroids, immunosuppression, biological therapy – I underwent many treatments. Sometimes it was better, sometimes worse.

After ten years I had a shock and then things came one after another: bowel perforation, peritonitis, sepsis, saving my life, ileostomy, colostomy, abscess, MRSA, various fistulae, long months spent in the hospital, over a dozen of surgeries, most including a bowel resection. I was fighting against all the odds. Unfortunately, it was an uneven fight. Every little bit of progress was followed by regression. All over a span of six long years.

When they proposed the parenteral nutrition to me, I knew I could only get better but little did I expect how much better!! In a few months, my organism has reached such a good condition, I didn’t recall feeling better ever before. I am still ill but thanks to a backpack pump I am socially active, I work, travel, meet with my friends, ride a bicycle, hike… I feel ALIVE!

And my APETTITE FOR LIFE just keeps growing!

Looking for support?

Do you have problems with your bowels?
Are you looking for support? Do you want to know how to enjoy your life despite of a PEG, feeding tube, central venous catheter and many hours of infusion administration?
Do you have an inflammatory bowel disease and a need for some positive energy and knowledge from other IBD patients?
Do you live in a country without any support groups for people with digestive system insufficiency?
Join us! Together we will try help you!

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