Maja Brodowicz

On a certain winter day in January 2012, I went to a hospital in order to undergo ERCP. A physician suspected that I had a gallstone so I readily agreed to the surgery. That day turned out to be the worst day of my life! Due to the surgeon’s incompetence in performing the surgery many complications occurred: acute pancreatitis, ARDS, bowel perforation, peritonitis, pneumonia with pleural effusion, SEPSIS, 7 surgeries, nerve paralysis and coma.

I was getting weaker with each passing minute. After my family’s intervention and talks with the voivodeship advisor, I was moved to the Pirogow Hospital where the Nutrition Centre is located. They just barely made it in time. It was only there that I met real doctors, among others dr Kunecki, to whom I owe my life. He took care of me with great care and professionalism as he brought me back to health. It turns out that I have had been starved!

Dr Kuniecki was treating all my ailments and, most importantly, he provided me with nutrition. I was fed enterally and parenterally for about 7 months. I stayed in the hospital for 9 months altogether.

I have been parenterally fed for a few years. My illness ruined my everyday life. I was a very active person – both physically and at work. I jogged, played team sports, rode horses, hiked and worked with children. I miss all of it greatly. Unfortunately, I am not able to return to my prior activities as the leg nerves paralysis has left me far less mobile.

I spend the evenings “cooking” my solutions because it is us – the patients – who prepare them for ourselves. After that, I spend 12 hours having my TPN administered. I was once very ashamed of my disability. Then I had met people who were in a similar situation and changed my mind. Thanks to a pump, I am now able to live normally.

Because of my weak muscles and poor physical ability, a rehabilitation is in order. I wanted to go to a sanatorium to ease my symptoms but it did not work out. My husband got a referral but I did not, all because of my parenteral nutrition. I think it is unfair that they don’t want us in the sanatorium. After all, It is not contagious!

A definite advantage of parenteral nutrition is the fact that I am alive. I would have no chances of survival if not for it. The main drawback is a problem with travelling. This year I had to take half a trunk of medication so that I could prepare solutions for myself. It also requires a sterile environment. Problematic but one can bear with it.

Looking for support?

Do you have problems with your bowels?
Are you looking for support? Do you want to know how to enjoy your life despite of a PEG, feeding tube, central venous catheter and many hours of infusion administration?
Do you have an inflammatory bowel disease and a need for some positive energy and knowledge from other IBD patients?
Do you live in a country without any support groups for people with digestive system insufficiency?
Join us! Together we will try help you!

Contact us

How you can help?