Do you have problems with your bowels?
Are you looking for support? Do you want to know how to enjoy your life despite of a PEG, feeding tube, central venous catheter and many hours of infusion administration?
Do you have an inflammatory bowel disease and a need for some positive energy and knowledge from other IBD patients?
Do you live in a country without any support groups for people with digestive system insufficiency?
Join us! Together we will try help you!
I’m Marcin. I’m 37 years old and I’ve been struggling with Crohn’s disease ever since I was 13. I’ve been receiving parenteral nutrition since 2010. When I first heard that I’m going to need lifelong PN support, I was devastated. I thought my life had ended – I won’t be able to work, go on a vacation with my family or even go out shopping. And even as I thought it couldn’t get any worse, I was constantly being faced with health, work and personal problems. After the initial crisis, I have come to accept the current state of being. I was slowly re-learning how to live. Now, after 7 years of my journey with TPN, I feel like a different person. What I’ve been through has made me a lot stronger. I look at the world differently and I can enjoy every little success. Thanks to the changes in my lifestyle, I can travel and spend time with my daughter again – even if it’s a bit more difficult. Moreover, now I can truly value all the people who have stood by me and encouraged me in spite of the hardships.
